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June 19, 2009

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Watching Emily's weight has always been important. Her large size (both as a baby and now) makes certain activities a little harder for her. Just learning to hold her head up was a major achievement. ;o)

My Jessica was --and still is underweight-- so increasing calories was always a challenge. I found that paying attention to the voice inside you really helps, there was a time when the Dr's wanted Jessica to have this medication before meals...it tasted like Alka-Seltzer-- after a while I realized that Jessica couldn't eat after taking that medication and so I asked if she could take the meds a different time-- I am glad I asked-- it did help Jessica to have a better eating expirence.

The 'eating/feeding' experience is more than just that: Eating and Feeding. It should include the time spent sitting around the table with your family 'learning' by watching and absorbing the routine day after day ... not left only to the back bedroom with a g-tube feed. Sights and smells are a GIANT part of the learning process.

When my son, Nathan, was a wee one, I'd hold him in my arms while stirring dinner on the stove top, often dabbing a small taste in his mouth. The sights and smells of the dinner would really 'wake up' his senses. We also included him at the table for each and every family meal ... no matter if he put a speck of food in his mouth. There is something to be said about learning by osmosis, habit, routine ... baby steps.

Absolutely, Mrs. Mac! [Yur gettin a littl ahead of me here.] Layering on the social aspects of eating is in my plan. Everyone else, just try to keep up with Mrs. Mac!

Emily's current beauty and holding-her-head-up can give everyone hope and a good understanding that early struggles to move are not dire-prognosis-bound. Thanks for reinforcing an important point, MM. (Hope you are 100% soon!)

The challenges of getting enough calories into your child is shared by many (from what I read in other blogs), Stacey. You give an excellent suggestion for looking at the timing of meds with meals to all those struggling to get their children to eat. Thanks!

OK, OK, ... I'll try to refrain from gettin' ahead of the topic here ;) I just get so excited about successful progress related to eating/feeding youngsters that struggle. Hang in there parents ... and don't lose sight of the goal. Even if that goal seems far off ... or may never fully be acquired. Steady slow progress is a far better outcome than giving up and having no progress. 'nuff said' ... I'll be quiet as a little mouse until I just can't contain my excitement !! :)

We have certainly had our struggles with Rhema in regard to eating. (She was ultimately diagnosed with a feeding disorder). A book I found helpful was "Food Chaining" (Fraker, Fishbein, Cox, Walbert) - it helped me identify good foods that Rhema was more likely to tolerate based on color and texture. Also, once we put her on a GFCF diet, she began to feel better and, in turn, eat better.

Thanks, Barbara, for writing about this. You've touched on several things we've worked through with Hannah. We're often on a see-saw, working with doctors to modify her g-tube diet to slow weight gain, particularly given her smaller-than-average size and growth curve, but also making sure she gets enough of the right stuff. The right stuff is protein, fats, fiber, etc.: the right amount to keep our system running well.


We're still working through all this. Interested to read your next blog(s) on this topic & appreciate everyone's ideas via the comments, too.

I am lovin' your repeated encouragement to younger parents, Mrs. Mac!

I consider you a valid resource, rhemashope, and will add that book to my reading list. Thanks! This is a good place to mention the GFCF diet as another option to explore. (Danette?)

Welcome back, Dad @ Kintropy! Long time no see! Thanks, too for repeating points that have been borne-out in your experience.

I expect to post again later today - after Studly Hubby and I go out to lunch for Father's Day. Later, y'all!

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